First Name

Last Name

I wish to remain anonymous

YesNo

Mobile:

Street Address

City

Country

State

Postal Code

Provinces

State/Province

Condition connection:

I am affected by:

My diagnosis is:

They are affected by:

Their diagnosis is:

Your Story

Tell us about yourself, your diagnosis, and life with Loeys-Dietz syndrome:

Have a photo to add to your story?
Add it here!

Names of people in the photo:

Photo Location:

I am willing to be interviewed to discuss my story further

YesNo

Collected stories may be used in future Foundation publications, both print and online.

Contact swatson@marfan.org for details.