Teen Program Emails
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I am affected
My child is affected
My partner/spouse is affected
Another family member is affected
I lost someone who was affected
I am a medical professional
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I am/They are affected by:
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Aortic Aneurysm
Bicuspid Valve
CCA (Beals)
Ectopia Lentils
Ehlers-Danlos Syndrome (EDS)
Loeys–Dietz Syndrome (LDS)
Mass Phenotype
Marfan Syndrome
Shprintzen-Goldberg Syndrome
Stickler Syndrome
Vascular Ehlers-Danlos Syndrome (VEDS)
I am affected by another related condition
Unknown/Prefer Not to Respond