Attitude is Everything / Parents and Carers in Performing Arts:
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How do caring responsibilities intersect with disability and the music industry?
Welcome to our survey.
As we know from previous
Parents and Carers in Performing Arts
research, working in the music sector presents unique challenges for those balancing careers and parental and/ or caring responsibilities.
Parents and Carers in Performing Arts
and
Attitude is Everything
are now partnering to shine a light on the experiences of
Deaf, disabled and/or neurodivergent
individuals who navigate both their careers in music and their responsibilities as carers and/or parents.
Parental responsibilities are clearly defined as an adult or caregiver responsible for the upbringing, care, and guidance of a child. The definition of a Carer is less clear. We understand that many people may not identify as ‘carers’, whilst still providing daily living task support to another adult, or child with additional requirements, in their lives.
By ‘disabled people’, we mean anyone who identifies as such, and those who may have legal protections under the Equality Act 2010 as a disabled person but not personally identify as such.
We recognise that this might include:
People who identify as Deaf and use British Sign Language as a first language.
People who identify as deaf (typically people who use hearing aids and/or lip-reading).
People who identify as neurodivergent (which can include people with ADHD, autism, dyslexia, dyspraxia, dyscalculia, dysgraphia and Tourette’s syndrome).
People with learning difficulties
Many people with long-term medical conditions or diseases (such as cancer, HIV etc).
Many people with mental health conditions that impact their daily lives.
We know that the barriers faced by disabled individuals can be compounded by the challenges faced by caring and/or parental responsibilities , often leading to underrepresentation in the industry. By capturing your experiences, we hope to identify barriers and highlight best practices in order to share them with the industry.
Your insights are invaluable. Together, we can ensure that every voice is heard, and that the music industry reflects the richness of its contributors.
Thank you for being a part of this important conversation.
PiPA and Attitude is Everything
If you have any questions about this survey, please contact
cassie@pipacampaign.com
How We Will Use Your Data
Your privacy is our priority. This survey will be conducted in accordance with the General Data Protection Regulation (GDPR). This data is collected by Attitude is Everything, and is shared with PiPA. Attitude is Everything's data privacy policy can be found via the link at the bottom of this survey.
Purpose of Data Collection
: Your responses will be used to analyse the intersection of caring and parental responsibilities for individuals with disabilities in the music industry. The findings may contribute to reports, publications, and initiatives aimed at promoting inclusivity within the sector.
Data Anonymisation:
All data collected will be anonymised to ensure that no individual can be identified from the responses provided.
Storage and Security:
Your data will be stored securely and accessed only by the research team. We will implement appropriate technical and organisational measures to protect your data.
Retention Period:
Your data will be retained only for as long as necessary to fulfil the purposes of the research. After this period, all identifiable data will be securely deleted.
Your Rights:
You have the right to access, rectify, or request the deletion of your data at any time. If you wish to exercise these rights, please contact us at
cassie@pipacampaign.com
I consent to the collection and use of my data as outlined above
Yes, I consent
About Your Experience
We would like to include everyone’s voices, whether you are currently working in the music industry or not. If you are no longer working in the music industry – think about your most recent experiences. Please confirm:
I am currently working in the music industry
I have left the music industry
Section 1: Demographics
1. What is your age?
18-25
26-30
31-40
41-50
51-60
61-65
Over 65
Prefer not to say
2. What is your gender?
Female
Non-binary
Male
Prefer not to say
3. Transgender is an umbrella term that refers to people whose gender identity, expression or behaviour is different from those typically associated with their assigned sex at birth. Other identities considered to fall under this umbrella can include non-binary, gender fluid, and gender-queer.
Using this umbrella definition, do you identify as transgender?
Yes
No
Prefer not to say
4. What is your ethnic group? (Please select one option that best describes your ethnic group or background.)
White: English/Welsh/Scottish/Northern Irish/British
White: Irish
White: Gypsy or Irish Traveller
White: Other White background (please specify below)
Mixed or Multiple Ethnic Groups: White and Black Caribbean
Mixed or Multiple Ethnic Groups: White and Black African
Mixed or Multiple Ethnic Groups: White and Asian
Mixed or Multiple Ethnic Groups: Other Mixed/Multiple ethnic background (please specify below)
Asian or Asian British: Indian
Asian or Asian British: Pakistani
Asian or Asian British: Bangladeshi
Asian or Asian British: Chinese
Other Asian or Asian British Background (please specify below)
Black, Black British, Caribbean or African: African
Black, Black British, Caribbean or African: Caribbean
Other Black, Black British, Caribbean or African background (please specify below)
Arab background
Latino/ Latina/ Latinx background
Any other ethnic background (please specify below)
Prefer not to say
4a. If you have chosen any other background in the previous question, please specify
5. What is your marital status?
Single, never married
Married
Civil partnership
Living with partner
Divorced
Widowed
Separated
Other status (please specify) below
Prefer not to say
5a. If you chose "other status" in the previous question, please specify
6. What is the highest level of qualification that you hold?
GCSE
A-Level
Vocational qualification (e.g. NVQ, BTEC etc)
Bachelor's degree
Master's degree
Doctorate degree
None of the above
7. Are your day-to-day activities impacted by a health/mental health condition or impairment which has lasted, or is expected to last, at least 12 months?
Yes
No
8. Do you identify as a disabled person?
Yes
No
Don't know
9. How would you describe your lived experience? (Select all that apply)
Deaf BSL user
Hearing impairment
Immunocompromised
Physical impairment
Visual impairment
Neurodivergent
Mental health condition
Sensory impairment
Long-term illness
Learning disability
Learning difficulty
Other
Prefer not to say
Not applicable
10. Socio-economic diversity is fundamental to this work and people’s ability to overcome barriers. We have therefore included the following question:
What was the occupation of your main household earner when you were aged about 14?
Modern professional & traditional professional occupations such as: teacher, nurse, physiotherapist, social worker, musician, police officer (sergeant or above), software designer, accountant, solicitor, medical practitioner, scientist, civil / mechanical engineer.
Senior, middle or junior managers or administrators such as: finance manager, chief executive, large business owner, office manager, retail manager, bank manager, restaurant manager, warehouse manager.
Clerical and intermediate occupations such as: secretary, personal assistant, call centre agent, clerical worker, nursery nurse.
Technical and craft occupations such as: motor mechanic, plumber, printer, electrician, gardener, train driver.
Routine, semi-routine manual and service occupations such as: postal worker, machine operative, security guard, caretaker, farm worker, catering assistant, sales assistant, HGV driver, cleaner, porter, packer, labourer, waiter/waitress, bar staff.
Long-term unemployed (claimed Jobseeker’s Allowance or earlier unemployment benefit for more than a year)
Small business owners who employed less than 25 people such as: corner shop owners, small plumbing companies, retail shop owner, single restaurant or cafe owner, taxi owner, garage owner
Other such as: retired, this question does not apply to me, I don’t know
I prefer not to say
11. Do you have parental responsibilities for a child under 18? (Select all that apply)
Yes: Parent of a child or children (under 18 years)
Yes: Parent of a disabled and/or neurodivergent child
Yes: Parent of a neurodivergent child
Yes: Parent of an adopted child
Yes: Parent of a foster child
No
How many children do you have who are p
re-school age and under?
How many children do you have who are p
rimary school age?
How many children do you have who are s
econdary school age and above?
12. Do you have caring responsibilities for an adult over 18?
Carer of disabled and/or neurodivergent adult (18 years or over)
Carer of older person or people (65 years and over)
None
13.
Are you classed as an unpaid/informal carer?
Yes
No
Don’t know
If you are not sure whether you are classed as an unpaid/informal carer or not, answer these questions then continue with the survey:
Are you a friend or relative of someone who would find it very challenging to manage alone without the care and/or support you provide?
Yes
No
Are you paid to provide this care? (Carer’s Allowance does not count)
Yes
No
Prefer not to say
Other (please give details)
If you answered "other" to the previous question, please give details
Section 2: You and your work
This section asks questions about your work and role. Please think about the role which you spend most of your time in, as we realise that you might be juggling different things at any one time.
14.
Where is your place of work based?
London
North East
South East
North West
South West
Scotland
East of England Wales
East Midlands
Northern Ireland
West Midlands
Republic of Ireland
Yorkshire and the Humber
Overseas (please specify)
If you answered “overseas ”to the previous question, please specify
15.
Which best describes your role(s)?
Administration & Management
Booking Agent / Promoter / Tour Management
Legal & Accountancy
Live Technician: Sound / Lighting / Instrument
Music Producer / Engineer / Arranger
Music Tutor / Teacher / Lecturer
Orchestral Member
Performer / DJ / Singer / Musician
Marketing / Press & PR / Communications / Journalism
Recording Studio Management
Stage Management / Technical / Production / Lighting
Talent Management
Writer / Lyricist / Composer
Other (please specify)
If you answered “Other” to the previous question, please specify
16.
Which best describes your current employment status? Please select all options that apply.
Employed Full-Time
Employed Part-Time
Employed Fixed Term
Self-Employed / Freelancer
Unemployed / Not in work
On parental leave
On sick leave
Section 3: Income
17.
Please estimate your gross income (in £'s) over the last year earned from your work.
18.
Thinking about your overall income, as listed above
18a. Does this income cover your basic outgoings/expenses?
No
Rarely
Often
Always
18b. Does this income allow you to cover unexpected expenses?
No
Rarely
Often
Always
19.
Thinking about your total household income (including income from you and anyone else who lives with you and makes a financial contribution to the household).
19a. Does your total household income cover your basic outgoings/expenses?
No
Rarely
Often
Always
19b. Does your total household income allow you to cover unexpected expenses?
No
Rarely
Often
Always
Section 4: Managing childcare responsibilities
20.
If you are living with a partner, how is your childcare normally divided between you?
Please note:
this question is for how childcare is divided between you and your partner only - irrespective of other help from e.g. grandparents, a nanny etc.
What percentage of childcare is done by you?
What percentage of childcare is done by your partner?
Or choose from the following:
I solo parent
Not applicable
Prefer not to say
21.
What regular childcare do you have in place beyond any that may be provided by a partner?
After school club
Au pair
Childminder
Family member
Nanny
Nursery
School
Other (please specify)
Not applicable e.g. no longer need childcare
Prefer not to say
21a If you answered “other” to the previous question, please specify
22.
When your regular childcare solution is unexpectedly not available, what would you do? Please select all options that apply:
Take time off work
My partner has to take time off work
The organisation I work for provides emergency childcare
Friends and family step in to provide childcare
Other (please specify):
Not applicable e.g. no longer need childcare
Prefer not to say
22a If you answered “other” to the previous question, please specify
23.
Please estimate how much you typically spend on childcare per week (excluding any free hours entitlement).
Section 5: Managing support of another adult
We also wish to hear from anyone who spends (or who has spent in the last five years) a significant amount of time supporting and/or caring for someone in their life whose
day-to-day activities are impacted by a health/mental health condition, impairment or neurodivergent diagnosis which has lasted, or is expected to last, at least 12 months
.
If answering for care responsibilities that you no longer have, but have had in the past 5 years, please answer the following section as would have applied at the time.
2
4.
On average, how many hours per week do you spend on caregiving tasks?
Less than 5 hours
5–10 hours
11–20 hours
More than 20 hours
Not applicable
Prefer not to say
25.
On a scale of 1 to 10, how challenging is it for you to balance your caregiving responsibilities with your work commitments?
(1 is least impactful, 10 is most impactful)
Please select...
1
2
3
4
5
6
7
8
9
10
26.
Have your caregiving responsibilities affected your career progression or job performance? (e.g., missed promotions, reduced hours, or job changes)
Yes, significantly
Yes, somewhat
No
Not applicable
Prefer not to say
26a. Please give further information if you would like to
27.
How would you rate the impact of caregiving on your emotional and mental well-being?
Very positive
Somewhat positive
Neutral
Somewhat negative
Very negative
Not applicable
Prefer not to say
28.
Do you feel you have adequate support (e.g., from family, friends, employers, or professional services) to manage your caregiving responsibilities?
Yes, completely
To some extent
Support available is inconsistent
No
Not applicable
Prefer not to say
28a
Please give more details if you would lik
e
Section 6: Support strategies and access
29.
What support, provided by the organisation(s) that you usually work for, do you take advantage of to help you manage caring responsibilities? Please select all options that apply:
Ad hoc childcare provision
Childcare vouchers
Eldercare
Creche or daycare
Emergency childcare
Flexible and/or after-hours childcare
Flexible hours
Long-term scheduling of employee commitments
Part-time work
Reduced hours
Working from home
Job share
Other (please specify):
No childcare options provided
Not applicable
Prefer not to say
29a
If you answered “other” to the previous question, please specify
30.
Are your access requirements as a disabled person fully met in your current workplace(s)?
Yes
No
Not applicable
Prefer not to say
30a If no, please describe what access requirements are not currently me
t
31.
Have you ever turned down work due to your access requirements not being met?
Yes
No
Not applicable
Prefer not to say
32.
Have you ever turned down work because of caring responsibilities?
Yes
No
Not applicable
Prefer not to say
33.
Have you ever been unable to attend an audition, interview, meeting, or rehearsal because you couldn't find alternative care arrangements and/or because of your access requirements not being met?
Yes, because of caring responsibility
Yes, due to my access requirements not being met
Yes, because of both
Neither
Not applicable
Prefer not to say
34.
If so, how often has this happened?
More than once a week
Once a week
Once a month
Once every 6 months
Once a year
Once every few years
Not applicable
Prefer not to say
35.
Have you ever had to change your work role due to your care responsibilities and/ or access requirements?
Yes, because of caring responsibility
Yes, due to my access requirements
Yes, because of both
Neither
Not applicable
Prefer not to say
36.
Have you ever had to change your work location due to your care responsibilities and/ or access requirements?
Yes, because of caring responsibility
Yes, due to my access requirements
Yes, because of both
Neither
Not applicable
Prefer not to say
37.
Would you increase your hours of work if you could access more help with caring responsibilities/ increased access support for your access requirements?
Yes, if I could access more support with caring responsibilities
Yes, if I could access more support for my access requirements
Yes, because of both
Neither
Not applicable
Prefer not to say
38.
Please estimate how many additional hours you would like to work each week, if you could access more support:
39.
Other than statutory leave, have you taken a career break or time off from work due to care responsibilities and/ or factors relating to being a disabled person?
Yes, because of caring responsibility
Yes, due to factors relating to being a disabled person
Yes, because of both
Neither
Not applicable
Prefer not to say
39a
Please estimate the length of break or time off from work in months. (Please do not include any time from statutory leave / paternity/ maternity leave.)
40.
With regards to your work, what are the biggest challenges you face as a disabled parent or carer (please pick up to three options)?
Parenting challenges/ family commitments due to lack of flexible working/ scheduling issues
Lack of flexible childcare
Juggling touring/ working away from home
Family / Relationship challenges
Mental and physical wellbeing
Finances/ Insufficient earnings
Work/ life balance
Perceptions of others
Career progression/ opportunities
Cost of childcare
Lack of family support
Practice /rehearsal time
Other please state
40a. If you answered “other” to the previous question, please specify
41.
As a parent or carer, is there anything in particular that you rely on to balance your access requirements , caregiving responsibilities and career? (please pick up to three options)?
Family/ partner/ friends support
Childcare
Determination
Love of the art
Stable finance
Other work
Access to Work
Own resources
Supportive employer and/or flexible working
Other (please specify below)
41a. If you answered “other” to the previous question, please specify
Section 7: Your job and working environment
42. Below are some statements regarding your job and working environment. Please read each one and indicate how much you agree or disagree. There are no right or wrong answers, so please convey your honest perceptions.
I am satisfied with my work-life balance, enjoying both roles
Please select...
Strongly agree
Somewhat agree
Neither agree nor disagree
Somewhat disagree
Strongly disagree
I manage to balance the demands of my work and personal/family life well
Please select...
Strongly agree
Somewhat agree
Neither agree nor disagree
Somewhat disagree
Strongly disagree
Nowadays, I seem to enjoy every part of my life equally well
Please select...
Strongly agree
Somewhat agree
Neither agree nor disagree
Somewhat disagree
Strongly disagree
I am worried about having to leave my job/work before I would like to
Please select...
Strongly agree
Somewhat agree
Neither agree nor disagree
Somewhat disagree
Strongly disagree
There is a risk that I will have to leave my present job/work in the year to come
Please select...
Strongly agree
Somewhat agree
Neither agree nor disagree
Somewhat disagree
Strongly disagree
I feel uneasy about losing my job/work in the near future
Please select...
Strongly agree
Somewhat agree
Neither agree nor disagree
Somewhat disagree
Strongly disagree
I might lose my job/work in the next 6 months
Please select...
Strongly agree
Somewhat agree
Neither agree nor disagree
Somewhat disagree
Strongly disagree
If I were to lose or quit my current job/work, it would be easy for me to find a job of similar salary
Please select...
Strongly agree
Somewhat agree
Neither agree nor disagree
Somewhat disagree
Strongly disagree
Considering all my efforts and achievements. my work promotion prospects are adequate
Please select...
Strongly agree
Somewhat agree
Neither agree nor disagree
Somewhat disagree
Strongly disagree
Considering all my efforts and achievements, my salary / income is adequate
Please select...
Strongly agree
Somewhat agree
Neither agree nor disagree
Somewhat disagree
Strongly disagree
43.
Might the barriers you face due to access requirements not being met and/or caring responsibilities mean you are considering abandoning your career in the performing arts in the long term?
Yes
No
Maybe
Don’t know
Not applicable
Prefer not to say
Section 8: General reflections
44.
What changes or improvements would make it easier for you to balance your access requirements, caregiving responsibilities, and career?
45.
Finally, if you no longer work in music, or are thinking of leaving, please provide us with some more detail, if you feel comfortable on what were the reasons for you leaving the industry?
Please note that this is not limited to caring or parental challenges, and includes any general, overall observations.
46.
If you would like to take part in a focus group to explore these issues in more detail, please leave your name and contact details
.
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