Contact Information


This form is monitored by our on-staff nurse and is intended for medical and mental health questions related to Marfan, VEDS, LDS, and related conditions.

For general inquires/to get in touch with a Marfan staff member on non-medical topics, please visit the contact us form under About Us. 
Demographic Information
Please tell us a little more about yourself to help us better serve you.

Please provide YOUR information. If your question is about another person, please choose "I am not affected" and select "my question is about someone else" below to provide their information.