First Name
Last Name
Phone
Email
What's the best way to reach you?
Email
Text
Phone
What platforms do you regularly use?
TikTok
Instagram
Facebook
YouTube
Snapchat
Threads
Twitter
Other
What other platform(s) do you use?
What is one thing you'd love to see The Marfan Foundation, LDSF, and The VEDS Movement doing on social media that you don't see happening yet?
Condition Connection:
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I am affected
My child is affected
Another family member is affected
I lost someone who was affected
I am a medical professional
Other/Prefer not to respond
I am affected by:
Please select...
Aortic Aneurysm
Bicuspid Valve
Congenital Contractural Arachnodactyly (CCA)/Beals Syndrome
Ectopia Lentils
Ehlers-Danlos Syndrome (EDS)
Loeys–Dietz Syndrome (LDS)
Mass Phenotype
Marfan Syndrome
Shprintzen-Goldberg Syndrome
Stickler Syndrome
Vascular Ehlers-Danlos Syndrome (vEDS)
I am affected by another related condition
I am affected by multiple conditions
Unknown/Prefer Not to Respond
My diagnosis is:
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Confirmed
Suspected
They are affected by:
Please select...
Aortic Aneurysm
Bicuspid Valve
Congenital Contractural Arachnodactyly (CCA)/Beals Syndrome
Ectopia Lentils
Ehlers-Danlos Syndrome (EDS)
Loeys–Dietz Syndrome (LDS)
Mass Phenotype
Marfan Syndrome
Shprintzen-Goldberg
Stickler Syndrome
Vascular Ehlers-Danlos Syndrome (vEDS)
They are affected by another related condition
They are affected by multiple conditions
Unknown/Prefer Not to Respond
Their diagnosis is:
Please select...
Confirmed
Suspected
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